Good morning!! I’ve decided to use my blog not only to writing, music, and other facets of entertainment, but, also to share my journey. I’ve had significant health problems for almost two years. Initially, my rheumatologist diagnosed me with systemic lupus (SLE) on June 19, 2013. However, the medication wasn’t working and I kept getting worse and developing new symptoms. So, after second, third, and fourth opinions, my neurologist believes instead I have fibromyalgia.
Thank you for listening, each week I will have a new installment chronicling my journey. Please, please feel free to comment, write, share. I hope to use this forum as a help to all of us, no matter what pain you are experiencing. You may also send stories to me via alleemaeauthor at aol dot com. I will respect your privacy and maintain your anonymity, if you so desire.
Hugs for today …
So, I’ve taken two months’ worth of Lyrica and I continue to see exceptional improvement over how I felt. Of course, if I don’t continue with yoga, stretching, cardio, and strength training, my body feels tighter than the rubber bands on braces. When it’s cold, I imagine the stick of Laffy Taffy…do you remember that candy? The one with the obnoxious flavors, I personally devoured the banana or grape. But, when it was cold, that stuff was hard as a rock, and in the end, a person had to smack it on a hard surface to crack it into manageable pieces. Well, that’s my body without exercise.
So, you’ve got to get up, even if every muscle is screaming. Nothing gets better by remaining semi-immobile.
Something I’ve not noticed any improvement on is my intolerance to noise and other annoyances. So, let’s talk about – IS Misophonia Physiological Response Related to Auto-Immune Disorders?
Since I was a child, I cannot tolerate certain noises or movements. If I engage in repetitive motion too long, it makes me nauseated. I cannot be around anyone smacking food, gum, or heaven freaking forbid SOMEONE EATING A SUCKER! My eye twitches and my rage factor hulks out in a color darker than green.
Also, if someone begins shaking or vibrating the bed, chair, couch, etc that I’m on- I retreat as if on fire. For example, my husband has a nervous leg habit. If he is sitting, he will bounce his knee, not very quickly, but, this deliberate heel lift, toes smash to the floor, and he drops to bounce his heel off the floor. The whole couch has this subtle shake and GEEZ, I get up immediately to move. I know he isn’t doing it on purpose, but, I can’t deal with it. And, if he shakes his leg or foot in bed, forget it, I’m up and out of my cozy warm spot.
So, I’m left to wonder, since my skin, muscles, and nervous system are so sensitive, could my physiological responses somehow be connected? Of course, research on such a thing is rare, if even thought of. But, I will tell you, every nerve ending in my body seems to be on high alert at all times and I cannot imagine there is zero connection.